Entidades Internacionais de Doenças Raras EUA

Profissionais de Saúde

Links

Online Journals and Magazines

• Advance for Respiratory Care Practitioners
• Advance Newsmagazines
• American College of Chest Physicians
• COPD Digest
• COPD Journal
• Journal of Clinical Investigation
• MEDLINEplus
• Medscape
• New England Journal of Medicine
• PubMed Central

Related Organizations

• American Association for the Study of Liver Disease
• American Society for Bioethics and Humanities
• American Liver Foundation
• American Lung Association
• American Medical Association
• American Thoracic Society
• American Thoracic Society Public Advisory Roundtable
• British Liver Trust
• Canadian Liver Foundation
• Children’s Liver Disease Foundation
• COPD Foundation
• Medical University of South Carolina Alpha-1 Research Program
• Mercy Medical Airlift National Patient Travel Center
• National Institutes of Health
• National Jewish Medical & Research Center
• National Society of Genetic Counselors
• Pulmonary Education & Research Foundation
• Pulmonary Hypertension Association
• University of Florida Alpha-1 Research Program
• U.S. National Library of Medicine

Transplant Information

• American Society of Transplantation
• LifeGift Organ Donation Center
• Organ Procurement and Transplantation Network
• Second Wind Transplant Association of St. Louis
• Transplant Living
• Transplantbuddies

Drug Databases

• Healthtouch
• RxList – The Internet Drug Index

Industry Links

• Accredo Therapeutics
• Aralast
• Baxter Healthcare
• Centric Health Resources
• Coram
• GlaxoSmithKline
• Prolastin
• Talecris Biotherapeutics
• Zemaira
• CSL Behring

Support Group Websites

• Alpha-1 Association
• Alpha-1 Association of Australia
• Alpha-1 Kids
• Alpha-1 Liver Support
• AlphaNet
• Australian Lung Foundation
• Deutsche Emphysemgruppe e.V.
• EFFORTS
• Fundación Alfa-1 de Puerto Rico
• Second Wind Lung Transplant Association
• Spider Spun

More Information

• Association for the Accreditation of Human Research Protection Programs
• Air Charity Network
• The Center for Genetic Research Ethics & Law – Case Western Reserve University
• Centerwatch
• Cholestatic Liver Disease Consortium
• ClinicalTrials
• Coalition for the Advancement of Medical Research
• CRISP Database
• Health Insurance Consumer Guides
• Patient Notification System
• Rare Lung Disease Consortium
• Tox Town